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During the course of the meeting I had the opportunity to ask the therapists and patients about their feelings about lymphedema and what advice they would give other patients. Several comments hit home and resulted in a very interesting exchange of thoughts and ideas. I have put some of those comments on our website. Consider them, agree or disagree and respond if you like. The results will be presented in our next eNews.

(The following comments are from patients and are not the views of Peninsula BioMedical, Inc.)

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My feelings about lymphedema

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Comment 1 - I felt sorrow at the enforced changes in my life.

Do you agree? Yes     No

Your comments:

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Comment 2 - I felt frustration with the lack of progress at certain points in my treatment.

Do you agree? Yes     No

Your comments:

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Comment 3 - I felt frustrated by the ignorance in medical community - STILL.

Do you agree? Yes     No

Your comments:

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What Advice would you give other patients who suffer from lymphedema?

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Comment 1 - Don't isolate yourself because of this condition - there are a lot worse things to suffer from!

Do you agree? Yes     No

Your comments:

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Comment 2 - Just because you have to wear a sleeve doesn't mean you need to avoid people.

Do you agree? Yes     No

Your comments:

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Comment 3 - Don't feel that you must answer every busybody out there who wants to know about your condition. Sometimes the best answer is "Why do you need to know?"

Do you agree? Yes     No

Your comments:

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What information were you given about lymphedema?
All the information I needed.
A reasonable amount of useful information, but I still had to find some information.
Very little information.
I was told that only women with mastectomies get lymphedema.
Zilch.

Your comments:

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