My name is Tina and I have lymphedema. I was diagnosed in 1997 and again in 2004. Why 2 times? I'm a cancer survivor and when I developed the first round of lymphedema no one had a clue. I swelled and was outright miserable, I was told to elevate and nothing happened. I was frustrated and looked in every book I could find on the topic. It wasn't until the 2000 era when I got a computer that I ran into some information that changed my life. I was both terrified yet glad I could finally know what to do. I got into therapy and reduced wonderfully.
My next round was from a fall, breaking my foot that lymphedema set in, this time the doctor told me what to do and I was pleased he knew! I know the frustrations, sadness, anger and hopeless feeling of having lymphedema and being ignored and blown off. It was and is my goal to help anyone and everyone I possibly can with the condition.
I created Lymphland.com website and also Lymphland Support Group Online that works out of Yahoo Groups. We have tons and tons of informational links, files, stories, pictures, therapist listings, and we have a chatroom that is staffed every single day with a person available to talk to anyone that drops in and help them. We also offer monthly chats as a group. Right now we are trying to get a lady who needs major help and home renovations on ABC's home makeover. I welcome anyone and everyone to join us. blessings, tina
www.lymphland.com (no longer active) health.groups.yahoo.com/group/lymphland/ (no longer active)